Chronic Illness

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A community/support group for chronically ill people. While anyone is welcome, our number one priority is keeping this a safe space for chronically ill people.

This is a support group, not a place for people to spout their opinions on disability.

Rules

Be excellent to each other
Absolutely no ableism. This includes harmful stereotypes: lazy/freeloaders etc
No quackery. Does an up-to date major review in a big journal or a major government guideline come to the conclusion you’re claiming is fact? No? Then don’t claim it’s fact. This applies to potential treatments and disease mechanisms.
No denialism or minimisation This applies challenges faced by chronically ill people.
No psychosomatising psychosomatisation is a tool used by insurance companies and governments to blame physical illnesses on mental problems, and thereby saving money by not paying benefits. There is no concrete proof psychosomatic or functional disease exists with the vast majority of historical diagnoses turning out to be biomedical illnesses medicine has not discovered yet. Psychosomatics is rooted in misogyny, and consisted up until very recently of blaming women’s health complaints on “hysteria”.

Did your post/comment get removed? Before arguing with moderators consider that the goal of this community is to provide a safe space for people suffering from chronic illness. Moderation may be heavy handed at times. If you don’t like that, find or create another community that prioritises something else.

founded 4 months ago

MODERATORS

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ShareMySims

That feeling when you've read up more on your chronic illness than your GP has (lemmy.world)

submitted 4 months ago by [email protected] to c/[email protected]

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[–] [email protected] 13 points 4 months ago (2 children)

This isn't about not trusting the science, this is about those doctors who either haven't kept up with their research, or haven't got the sense to be subtle when they need to double check something.

I've got a rare disease, and I've seen way too many of these doctors. The bright side is that they make the good doctors look even better 👍

[–] [email protected] 4 points 4 months ago (1 children)

Or maybe it's about how people are so full of themselves that they believe people should know everything about you before ever meeting you.

Maybe stop being so judgemental when someone has to learn about something before treating you. You'd rather they pretend they're all knowing and treat you when in reality they don't know shit?

No one person knows everything. That expectation will only lead you to disappointment.

[–] [email protected] -2 points 4 months ago

Are you serious? The post is about doctors who don't know their jobs.

I even said in my comment that they might have to double check things, but often don't have the sense to be subtle about it.

I'm not expecting to walk up to a stranger in the street and have them know the details of my illness, I'm talking about a trained professional who is about to give me advice or medication that could kill me if they get it wrong. They should at least know the basics, and certainly shouldn't just sit there with a blank look on their face.

Read my other comments on this post. I've had a GP as my wife what to do because he hadn't kept up with his work, while my dentists knew about my illness and made sure that they were taking any precautions that they needed to.

[–] [email protected] -2 points 4 months ago* (last edited 4 months ago) (1 children)

Aren't MDs required to take a set amount of CME hours every year as a prerequisite to holding a license to practice?

(Yes, they are)

But if your googling yields better results, I advise you to stop seeing your GP. it's all a scam anyway right?

[–] [email protected] 1 points 4 months ago

You've missed the point here. There are a lot of us with chronic illnesses who have been to see a doctor, and the doctor has used Google to look up our illness. These doctors don't seem to be keeping up to date with their research, and don't exactly fill us with confidence when they openly demonstrate their lack of knowledge.

The majority of us believe in the science, and a lot of us keep ourselves up to date as much as we can, so seeing doctors who don't even know the basics is infuriating.

If you'd taken the time to read either of my other replies on this post, you would have seen my example of the GP who asked my wife what to do.

There are a hell of a lot of good doctors out there, who know about our illnesses or even admit that they need to refresh their knowledge, but there are also way too many doctors who openly Google it and don't even pretend to know. They are the ones we complain about.