Chronic Illness
A community/support group for chronically ill people. While anyone is welcome, our number one priority is keeping this a safe space for chronically ill people.
This is a support group, not a place for people to spout their opinions on disability.
Rules
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Be excellent to each other
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Absolutely no ableism. This includes harmful stereotypes: lazy/freeloaders etc
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No quackery. Does an up-to date major review in a big journal or a major government guideline come to the conclusion you’re claiming is fact? No? Then don’t claim it’s fact. This applies to potential treatments and disease mechanisms.
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No denialism or minimisation This applies challenges faced by chronically ill people.
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No psychosomatising psychosomatisation is a tool used by insurance companies and governments to blame physical illnesses on mental problems, and thereby saving money by not paying benefits. There is no concrete proof psychosomatic or functional disease exists with the vast majority of historical diagnoses turning out to be biomedical illnesses medicine has not discovered yet. Psychosomatics is rooted in misogyny, and consisted up until very recently of blaming women’s health complaints on “hysteria”.
Did your post/comment get removed? Before arguing with moderators consider that the goal of this community is to provide a safe space for people suffering from chronic illness. Moderation may be heavy handed at times. If you don’t like that, find or create another community that prioritises something else.
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You've missed the point here. There are a lot of us with chronic illnesses who have been to see a doctor, and the doctor has used Google to look up our illness. These doctors don't seem to be keeping up to date with their research, and don't exactly fill us with confidence when they openly demonstrate their lack of knowledge.
The majority of us believe in the science, and a lot of us keep ourselves up to date as much as we can, so seeing doctors who don't even know the basics is infuriating.
If you'd taken the time to read either of my other replies on this post, you would have seen my example of the GP who asked my wife what to do.
There are a hell of a lot of good doctors out there, who know about our illnesses or even admit that they need to refresh their knowledge, but there are also way too many doctors who openly Google it and don't even pretend to know. They are the ones we complain about.