Hahahahahaha
this post was submitted on 20 May 2025
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Privacy
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I never fell for it. I hope none of my siblings did, either.
I would have thought that data would be worth more. Maybe the AI guys will just steal it, instead?
Siblings and first cousins.
Most likely the data 23andme already gathered is enough to narrow down just about anybody in the US.
340 million and me
I wonder if there was anything in the T&Cs that mentioned extrapolation of data leading to identifying genetic relatives and whether their consent was void on this basis. Or whether this could be grounds for interesting lawsuits from nonconsensual relatives being identifiable from the participants' data.
If we believe 23 and me, they have only recieved 11 data requests for 15 accounts and provided zero data to law enforcement.
https://www.23andme.com/transparency-report/
That is a report on formal law enforcement requests for direct account information. Law enforcement is known to use genetic ancestry, so either they are using other sites or just running the tests themselves instead of doing a formal request.
I couldn't find a case for suing companies, just defense requests to dismiss using the data in court but I might not be using the right search terms.
Yes but what about the times law enforcement sent in the DNA and found relatives. Three are stories of that happening if I remember correctly.
What about the thing I said?
Law enforcement is known to use genetic ancestry, so either they are using other sites or just running the tests themselves instead of doing a formal request.
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This is such a dramatic understatement. They didn’t just sell the genetic data of those 15 million customers. They sold the data of everyone they’re related to, as well. Which is the majority of the population.
You really don’t need to sample a large percentage to get the data of almost everyone.
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entirely fucking predictable. and 256 mil is chump change for essentially genetic data that could be extrapolated to most of the country.
Especially considering who bought it.
i can only imagine someone buying that data is up to no good. who is "regeneron" really?
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My dad was all about this for a while, including convincing my siblings and a few of his siblings to get the report.
I guess that means I'm somehow linked in to this if I ever happen to leave my DNA laying around in the wrong place.
He's awfully quiet about it now though.
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And this, ladies and gentlemen, is why you don't give your data to companies: their executives and shareholders care more about their bottom line than your privacy.
Exactly, and you cannot hope to see any meaningful regulation out of the current government.
The company will just buy The Secret Service/Trump's Presidential Library a fleet of Rolls Royce and he'll intimidate congress into silence.
Nope, and not even because of the current administration: this country is by, for, and about rich people, and people are getting deliriously rich off of our data right now so there's no political will to do anything about it.
Lol no regulation needed huh
AS soon as the data is secured, enprison the buyers
Realistically, what could a company do with the data? I can see how it could be dangerous in the hands of a nation state if someone is a politician. But otherwise, besides the gross privacy violation, im not sure I see what real harm will come of this.
Ever see Minority Report?
That, but without the psychics. Insurance companies use things called actuary tables to estimate risk. If they have your DNA, they could decide that, since you have markers for early onset Alzheimer's, they're going to charge you double for life insurance.
Law Enforcement could decide that, since you share some trait with other common criminals, you're more likely to do crime, and get warrants to surveil you more closely. Maybe you don't do crime, but you get pulled in for a crime in the neighborhood because you're the one with the highest crime DNA score, and that's enough to convict you. Maybe you get pulled over more often for going a little over the speed limit, because you're being watched more closely. Maybe they just decide you're so likely to do a crime, they imprison you proactively.
None of this is absurd; it's all been done before. The Nazis used to evaluate people by how big their skulls were - this is Eugenics on fucking steroids, backed by the smell of legitimacy because DNA. People have wrongly gone to prison and served entire sentences because of bad DNA testing, and it's still used.
This should worry you. It's not hypothetical, it's not a conspiracy theory - the potential for abuse of a database like this should concern everyone, liberal or conservative.
Like all those white supremicists who discovered they have black ancestors; only, now, all their little KKK friends know, too!
If the state starts prosecuting DNA crime they’ll just swab people they don’t need a private firm barely anyone’s used to collapse.
Dodgy American insurance firms could try and get their hands on the data no doubt, but Regeneron has to abide by the same data protection rules as 23andme.
Oops.
Hey - don't give your data to a corporation if at all possible. kthx