this post was submitted on 28 Jun 2024
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This. One of the dangerous things about chronical pain that I think might be underappreciated is that it blinds you to signals that in a healthy person would cause them to seek medical help. When doctors ask now I always caveat that I'm a poor witness of my own wellness because there have been times when I felt like I was doing fine but in fact needed surgery. I don't know how doctors (or occupational health, or social workers, or carers) do it, there's basically no reliable information in talking to an ill person but that's like 90% of what you have to go on.
I feel that.
Back when I was a caregiver, pain assessment was a bit of a pain lol. I'd have patients with cancer, and they'd just not notice something like a sore forming because it just got drowned out by chemo, or whatever. I'd do the daily thing of asking about their pain levels, and how the hell can they answer? They're at a constant 8 to 10 range, so it's kinda pointless to try and rely on pain signals to find new pains that need help.
Mind you, I was doing other checks, so nothing got missed, but it could have.
And, like you said, the usual "script" for checking on pain breaks down with chronic pains. You have to really get detailed, focus on tiny changes in pain with them.
And, even knowing all that, I still have trouble communicating my own pain and issues because it's just so overwhelming sometimes. I sometimes joke with a new doctor or nurse and tell them it would be faster to list what doesn't hurt. Except it isn't really a joke.
So I just keep compartmentalizing everything and try to be a good patient lol.