this post was submitted on 12 Nov 2023
155 points (98.7% liked)

World News

38500 readers
2836 users here now

A community for discussing events around the World

Rules:

We ask that the users report any comment or post that violate the rules, to use critical thinking when reading, posting or commenting. Users that post off-topic spam, advocate violence, have multiple comments or posts removed, weaponize reports or violate the code of conduct will be banned.

All posts and comments will be reviewed on a case-by-case basis. This means that some content that violates the rules may be allowed, while other content that does not violate the rules may be removed. The moderators retain the right to remove any content and ban users.


Lemmy World Partners

News [email protected]

Politics [email protected]

World Politics [email protected]


Recommendations

For Firefox users, there is media bias / propaganda / fact check plugin.

https://addons.mozilla.org/en-US/firefox/addon/media-bias-fact-check/

founded 1 year ago
MODERATORS
 

When will people learn, don't trust any company with your data...

top 3 comments
sorted by: hot top controversial new old
[–] [email protected] 14 points 10 months ago

I hope they will be fined heavily for each and every incident and victim.

[–] [email protected] 10 points 10 months ago (1 children)

This is the best summary I could come up with:


Set up in 2006 to help researchers investigating diseases, the database contains millions of blood, saliva and urine samples, collected regularly from about 500,000 adult volunteers – along with medical records, scans, wearable device data and lifestyle information.

One company granted access, ReMark International, is a “global insurance consultancy” that underwrites a million policies a year and lists clients including Legal & General and MetLife.

Prof Yves Moreau, a genetics and AI expert who has worked on projects using data from UK Biobank, said the data-sharing appeared to be a “serious and disturbing breach of trust”.

Prof Sandra Wachter, an expert in technology and regulation at the Oxford Internet Institute, said the cases risked eroding the trust of volunteers who “donated their data for a good cause”.

Flying Troika LLC’s website says it is a “pure research lab” offering “deep larning” solutions in sectors including insurance, pharma, manufacturing and retail.

The company is understood to have sought genetic data, MRI scans and other information in April 2021, to develop a “novel AI model” that can predict ageing processes.


The original article contains 1,361 words, the summary contains 178 words. Saved 87%. I'm a bot and I'm open source!

[–] [email protected] 19 points 10 months ago

serious and disturbing breach of trust

risked eroding the trust of volunteers

The damage is already done. Instead of lamenting the issue, find a way to fucking fix it.