this post was submitted on 16 Jul 2024
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Chronic Illness
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A community/support group for chronically ill people. While anyone is welcome, our number one priority is keeping this a safe space for chronically ill people.
This is a support group, not a place for people to spout their opinions on disability.
Rules
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Be excellent to each other
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Absolutely no ableism. This includes harmful stereotypes: lazy/freeloaders etc
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No quackery. Does an up-to date major review in a big journal or a major government guideline come to the conclusion you’re claiming is fact? No? Then don’t claim it’s fact. This applies to potential treatments and disease mechanisms.
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No denialism or minimisation This applies challenges faced by chronically ill people.
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No psychosomatising psychosomatisation is a tool used by insurance companies and governments to blame physical illnesses on mental problems, and thereby saving money by not paying benefits. There is no concrete proof psychosomatic or functional disease exists with the vast majority of historical diagnoses turning out to be biomedical illnesses medicine has not discovered yet. Psychosomatics is rooted in misogyny, and consisted up until very recently of blaming women’s health complaints on “hysteria”.
Did your post/comment get removed? Before arguing with moderators consider that the goal of this community is to provide a safe space for people suffering from chronic illness. Moderation may be heavy handed at times. If you don’t like that, find or create another community that prioritises something else.
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This meme is about when you’ve read the scientific literature surrounding your illness but your GP hasn’t. Of course, it is not the GP’s fault as they can’t know about every illness, but rather a problem with how our healthcare system makes GP’s instead of specialists survey chronic illnesz.
That's their job, essentially they are the front door to the world of medicine, and a lot of their work revolves around connecting you with someone who can help.
A good GP, when presented with symptoms and evidence of something they don't know much about, will say, "Huh. Let me have a look at some stuff", and then they will go check things out.
If things match up then they will likely say, "Ok, let's try X" , or alternatively, "I know someone who is better suited to deal with this", and hand you off. They might say, "Perhaps it's this other thing", which might piss off some long term sufferers of particular illnesses, but I'd prefer a no stone unturned approach to things than blanket dismissal.