this post was submitted on 20 Dec 2023
23 points (87.1% liked)

Health - Resources and discussion for everything health-related

2337 readers
183 users here now

Health: physical and mental, individual and public.

Discussions, issues, resources, news, everything.

See the pinned post for a long list of other communities dedicated to health or specific diagnoses. The list is continuously updated.

Nothing here shall be taken as medical or any other kind of professional advice.

Commercial advertising is considered spam and not allowed. If you're not sure, contact mods to ask beforehand.

Linked videos without original description context by OP to initiate healthy, constructive discussions will be removed.

Regular rules of lemmy.world apply. Be civil.

founded 1 year ago
MODERATORS
 

Mary Brown was sipping coffee at home in Ontario, Calif., Sunday morning when a friend sent a video clip that ruined her breakfast.

It contained a skit from “Saturday Night Live” the night before about the new gene therapies for sickle cell disease. In it, workers gather for an office white-elephant-style gift exchange. A white employee, played by Kate McKinnon, gives a Black employee with sickle cell, played by Kenan Thompson, enrollment in “Vertex Pharmaceutical and CRISPR Therapeutics’ exa-cel program for sickle cell anemia,” explaining that it was a cure and she had an in with the company to get ahead on the waiting list.

Thompson thanks McKinnon, hugs her, and then, to audience laughter, explains, “I’m just going to swap this out for a Boogie Woogie Santa” — a singing, trumpet-playing Santa figurine. Another white employee gets the cure, but explains he or a family member won’t be able to use it because “my whole family is white.”

...

Brown, the longtime director of the Sickle Cell Disease Foundation, was irate.

“To see sickle cell as a joke — it was very distressing,” she said. “I have seen people die. I have been to too many funerals.”

Brown was far from alone. The sketch reverberated around the sickle cell community the next morning. To many advocates, patients, and doctors, it seemed to perpetuate falsehoods and stereotypes that had harmed sickle cell patients and held back progress for decades: that sickle cell was strictly a “Black disease”; that patients didn’t or couldn’t make responsible decisions about their own disease — and would, for example, choose a Santa toy over a curative therapy.

you are viewing a single comment's thread
view the rest of the comments
[–] LetKCater2U 2 points 11 months ago (1 children)

Agreed. I read it as the absurdity that she would assume the black coworker had sickle cell just because he’s black—which is why he traded it for a gift he would actually enjoy.

[–] [email protected] 2 points 11 months ago (1 children)

No, he actually had sickle cell.

[–] LetKCater2U 1 points 11 months ago

Ahh ok. I didn’t see the actual skit so I got that wrong.