this post was submitted on 28 Sep 2023
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Oh hey, fam! Welcome to the club. I have all that as well, they think also as a result of a viral illness prior to Covid. Metabolic (mitochondrial dysfunction) and neuroimmune. At first, I was told I have anxiety, oh no wait, schizoaffective disorder, oh no no wait, conversion disorder, as if any of those things are even remotely similar. Lo and behold when I finally got a physician who has some idea how to diagnose and treat my symptoms, I'm doing much better. Like you said, I'm functional even if I don't feel great. And funny enough, none of my treatments include psychiatric medications.
This club sucks.
My wife is in the same club. Family history of lupus, all of the symptoms of lupus, several health conditions that are usually caused by an autoimmune disease, but the ANA panel was negative so it can't be lupus.
Luckily I've convinced her to actually go to a clinic that exists to diagnose hard to diagnose autoimmune diseases.
It doesn't help that she's a soft spoken petite woman, either. I have to go to doctors appointments with her for them to actually take her seriously.
This club sucks.