this post was submitted on 21 Dec 2024
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Chronic Illness

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A community/support group for chronically ill people. While anyone is welcome, our number one priority is keeping this a safe space for chronically ill people.

This is a support group, not a place for people to spout their opinions on disability.

Rules

  1. Be excellent to each other

  2. Absolutely no ableism. This includes harmful stereotypes: lazy/freeloaders etc

  3. No quackery. Does an up-to date major review in a big journal or a major government guideline come to the conclusion you’re claiming is fact? No? Then don’t claim it’s fact. This applies to potential treatments and disease mechanisms.

  4. No denialism or minimisation This applies challenges faced by chronically ill people.

  5. No psychosomatising psychosomatisation is a tool used by insurance companies and governments to blame physical illnesses on mental problems, and thereby saving money by not paying benefits. There is no concrete proof psychosomatic or functional disease exists with the vast majority of historical diagnoses turning out to be biomedical illnesses medicine has not discovered yet. Psychosomatics is rooted in misogyny, and consisted up until very recently of blaming women’s health complaints on “hysteria”.

Did your post/comment get removed? Before arguing with moderators consider that the goal of this community is to provide a safe space for people suffering from chronic illness. Moderation may be heavy handed at times. If you don’t like that, find or create another community that prioritises something else.

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[–] [email protected] 9 points 2 days ago (4 children)

Why would she be approved for that 8f she wasn't seeking it? I don't understand.

[–] mcteazy 21 points 1 day ago (1 children)

This is not a neutral informative piece, it's trying to push a narrative and build support for an agenda. Part of that is how this particular point is phrased. Her condition is eligible for MAID, since she doesn't want MAID and hasn't applied for it, she hasn't been approved.

[–] [email protected] 3 points 1 day ago

I’m having trouble parsing that actually - it sounds like she’s applied for it and has been approved for it, but would not like to resort to that option.

The conditions accepted for MAiD have broadened but to actually be “approved” for the procedure you have to apply for it. The article says “… comes amid her being approved” not “her condition being eligible”

After decades battling severe ME/CFS and systemic lack of support, Marcia Doherty – known online as “Madeline” – is going fully public in a desperate bid to secure her survival and fight for change. It comes amid her being approved for assisted suicide in Canada – something she doesn’t actually want at all.

I agree with you that this is a persuasive piece which leverages MAiD as a call to action to better care for people with this condition.

[–] [email protected] 9 points 1 day ago (1 children)

It is a cry for help to demonstrate how bad the condition is and the lack of support for it.

As per the article, this lack of support exists worldwide.

The way MAiD works in Canada, she has been approved but she is not forced to go through with it. It is now an option on the table for her if everything else becomes too much.

[–] [email protected] -3 points 1 day ago (1 children)

😃 "And! Just so you know, dear...you've been APPROVED for MAiD! Only if you want to go there though." 😔

[–] [email protected] 4 points 1 day ago

Yes because she requested it?

I requested ADHD medication and was approved for that. If I don’t want to take it or if I want to stop taking it that’s my choice.

This is kind of how healthcare works so I don’t understand the sarcasm.

I think her approval for MAiD also boosts the visibility of her disease and how, again, all countries (not just Canada) care for people with this condition (spoiler: they don’t).

Telling this story in the media is a last ditch effort to get adequate care. Otherwise, she doesn’t want to live like this. Sounds reasonable.

Other countries like the US would probably just prefer she die homeless, poor, and quietly in the street somewhere, while still denying her care for her condition.

[–] [email protected] 2 points 2 days ago

Because her other choice is to die of starvation.

[–] [email protected] -4 points 1 day ago (2 children)

This isn't an isolated incident. Some badies out there would love to save tax dollars with their dystopian nightmare.

[–] [email protected] 2 points 1 day ago

They should investigate. Particularly because a healthcare professional offering MAiD or even broaching the subject of MAiD with their patient is not permitted within the existing protocols and practices as I understand it.

If someone wants to seek MAiD they need to raise the topic with their healthcare team - not the other way around.

[–] [email protected] 0 points 1 day ago* (last edited 1 day ago)

Looks like what you linked was an isolated incident.

Through its comprehensive investigation, the Department has confirmed the four cases isolated to a single employee who is no longer with the Department.

https://www.veterans.gc.ca/en/about-vac/reports-policies-and-legislation/departmental-reports/report-allegations-inappropriate-conversations-veterans-about-medical-assistance-dying-maid/conclusion

And like others have said, being eligible doesn't mean being forced to use the program.