this post was submitted on 20 Apr 2024
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Asklemmy

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[–] [email protected] 3 points 6 months ago (1 children)

Well, the mod decided that I didn’t really have a diagnosis, because they didn’t understand what I’d said, and kept DMing me to tell me that I didn’t have Lupus, and shouldn’t be receiving treatment for it.

Ignore it, if you can. 99% of the people on the internet (and real life, sadly):

  • Don't pay attention enough to understand what you said/asked.
  • Assume that their life experience applies to everyone else on the planet.
  • Have no idea what life is like for everyone else.
[–] [email protected] 2 points 6 months ago

Thank you, and yes, you're right. That's why I don't post about things that will upset me, I was just desperate for some advice and support for the terrible disease with which I'd just been diagnosed. I (stupidly) assumed I could be relatively safe posting in a sub specifically dedicated to supporting people with a disease, but even the leader of the group can't be reasonable, which is really too bad. I've acclimated to having this disease now, and I'm confident I can get the help I need, so I know I won't be bothered by the opinion of an ignorant internet person anymore. But I'm obviously still bitter enough to complain about it somewhere else lol.