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Are any of the DNA testing companies trustworthy? (lemmy.world)

submitted 1 year ago by [email protected] to c/[email protected]

53 comments fedilink hide all child comments

So obviously we're all on Lemmy for a complicated combination of reasons, but we all likely share some common ground, namely...

need for privacy
need to own/control/access the data we produce
healthy skepticism about the trustworthiness of for-profit corporations, in general

So if we don't want meta to know even innocuous things; like how many times/when we message our grandma, and we don't google to know when we're searching for remedies to a rash, and we don't want reddit to... Well we just don't want reddit - we don't want them to profit from or weaponize that data against us in a myriad ways.

We also don't want them artificially removing features and creating tiered layers of service/value hidden behind a paywall (I understand this is very present in the some of the commercially available DNA services).

So that brings me to DNA testing services. Since they started to emerge in the mainstream they were immediately an interesting, exciting novelty and I also knew it was data I wouldn't feel safe trusting with a for-profit org - with broken systems like law enforcement and health insurers on speed dial and just salivating for the goodies they collect.

So all that considered, any groups that provide this type of service that you do trust/use, and why?

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[–] [email protected] 4 points 1 year ago (1 children)

Which is kind of my point. Even on Lemmy the "data ownership" isn't really up to the individual users, it's the instance owners. The only way to 100% control where your data goes (as an user) and who looks at it, is if you run your own instance. Otherwise you are still at the mercy of another master, hopefully a more benevolent one.

And if the instance that most new users default to is lemmy.world and that instance is 100K users strong, I think the "smaller instance" argument doesn't really apply there for most users.

[–] [email protected] 2 points 1 year ago

Even if you run your own instance, if you're federated with other instances then your posts, comments and upvotes could still be scraped by someone else