this post was submitted on 23 Nov 2023
12 points (100.0% liked)
Melbourne
1862 readers
91 users here now
This community is a place created for the people of Melbourne and Victoria. We are a positive, welcoming and inclusive community. We might not agree about everything, but we always strive to stay civil and respectful.
The focus of our discussions is based around things that effect Victoria, but we are also free to discuss our local perspective on wider issues. Or head to the regular Daily Random Discussion thread to talk about anything.
Ongoing discussions, FAQs & Resources (still under construction)
Adoption Certificate for Nellie, the Daily Thread numbat (with thanks to @Catfish)
founded 1 year ago
MODERATORS
you are viewing a single comment's thread
view the rest of the comments
view the rest of the comments
Can you get a patient advocate in hospital? I know some states have rules about patients asking for help after being refused.
I’m sorry you’re going through this, I spent years getting diagnosed with gastroparesis after many dismissals from specialists who didn’t even do the basic test. Was also told it’s stress, anxiety, psychological etc.
Anyway peg/j tubes are fairly standard things if one can’t eat /digest properly, what is their pushback reason on those?
Chronic pain is a hard problem to solve, pain specialists are super expensive and just seemed to push infusions or other medications rather than trying to work out the source. I had no success with them tbh. Have you read “explain pain”? (Apologies if you’re already aware of this and it’s not helpful).
I haven’t read it, thanks for the suggestion.
The specialist tells me that they don’t do it because of risks. My main disability also means poor wound healing that could lead to complications, and I’m being told that it could end up being permanent.
Having read up on it I agree but I am getting desperate.