this post was submitted on 14 Sep 2023
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I had Covid in 2022 and weeks after the infection I still wasn't feeling better. And my doctor apparently didn't know or care about Long Covid and just told me to slowly start working again. That's made me even worse and now I mostly have to lie in bed. I bet he doesn't even feel bad about that.
I'm pretty sure from most doctors' perspectives, you don't exist between the time they leave the room and the start of your next appointment.
That's horrible; sucks that you have to go through that. My friend has the brain fog (she's been reinfected multiple times) but I don't (anymore than the usual ADHD forgetfullness). I've tested positive once (January 2023) and I swear I had it a few weeks ago because the (mild) symptoms were the same.( 1 neg test early on, didn't retest).I was lucky, though. My body felt exhausted, but aside from that and sneezing/sore neck and headache maybe a tiny bit of sore throat it was very whatever both times. It felt the same as when I got the vaccines, only lasted a few days longer.
Strangest thing is the chest/heart pain I've had both times. It's a brief, intense, twinge that happens for anout 5-30 seconds and then goes away. Episodes last for months (but I had bloodwork and an EKG the first time, and if there's any damage it's undetectable). Oh and craving meat is also a thing. Was vegetatian until last December, furiously started craving meat and tested positive in January. Recently I had the same craving. A need for extra iron maybe?)
I had the full set of Moderna and then one or two boosters.
Any idea what could be the cause of your long-covid? What are your symptoms? What makes you feel better? Which (if any) vaccine did you get?
I've got fatigue and brain fog and my whole body hurts the next few days to weeks when I dare to do something mildly exhausting (like cooking pasta, showering, filling out long forms). I'm vaccinated, got two or three shots.
Nobody knows what the cause is. It seems to be the same as CFS/ME. Just with more cases because almost everyone on earth got infected.
Rest makes me feel better. But it takes time. With any luck I'll soon be joining a study on the effects of apharesis. And with any more luck it works and I won't be getting the placebo.
All I can do from here is hope that you feel better/heal (and that if you don't get the placebo, the treatment works!)
Being unwell is just the worst