this post was submitted on 13 Nov 2024
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submitted 2 weeks ago* (last edited 2 weeks ago) by [email protected] to c/[email protected]
 

There are downsides with downloading their app just to input bad data, but it's a fun thought.


edit: While we're at it we might as well offer an alternative app to people.

I posted in [email protected] to collect recommendations for better apps

The post: https://lemmy.ca/post/32877620

Leading Recommendation from the comments

The leading recommendation seems to be Drip (bloodyhealth.gitlab.io)

Summarizing what people shared:

  • accessible: it is on F-droid, Google Play, & iOS App Store
  • does not allow any third-party tracking
  • the project got support from "PrototypeFund & Germany's Federal Ministry of Education and Research, the Superrr Lab and Mozilla"
  • Listed features:
    • "Your data, your choice: Everything you enter stays on your device"
    • "Not another cute, pink app: drip is designed with gender inclusivity in mind."
    • "Your body is not a black box: drip is transparent in its calculations and encourages you to think for yourself."
    • "Track what you like: Just your period, or detect your fertility using the symptothermal method."

Their Mastodon: https://mastodon.social/@dripapp

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[–] [email protected] 3 points 2 weeks ago (1 children)

Thank you for not taking any offense to my frustrated tone, as it was indeed just that, frustration. Having questions and posting them here is completely understandable, and for what it's worth, I'd rather people ask than just never get an answer.

Though you are allowed to have your own opinion and come to your own conclusions, I think the fact you stated that you think using the apps was a bad idea even before now, and that doctors have been helping people long before apps, demonstrates that either I was not clear enough, or you were unable to appreciate the lived experience of people affected by their periods.

Doctors regularly misunderstand, misdiagnose, and outright ignore period related medical issues. I'm not sure where you live, but even in a country with the best healthcare in the world, it's literally impossible for doctors to provide the personalized information that apps can. I'm not saying that apps therefore must be used and are better than doctors, but I, a woman with periods, am telling you that my app has been more helpful than my doctor as far as managing my cycle goes. You don't have to believe me, or you can say that you don't think anything is worth the trade off in data for you as an individual, but people using these apps would obviously disagree. And not just because they don't know they're being tracked. We're all being tracked to a certain extent and we decide what we're willing to put up with in exchange. If you don't think you'd share your data for that convenience, fine, but people share data for other conveniences all the time. It's just extremely unfortunate that this data has now become so contentious.

[–] [email protected] 1 points 2 weeks ago (1 children)

Thank you again for your nuanced response. I get that tracking health data can be useful, but I think the real value comes from sharing that data with a doctor who can make sense of it – not from relying on an app, at least not yet.

I am aware of how stressful and confusing things can get when managing something like periods. Multiple members of my family have faced these struggles, and while the healthcare system in our country is disorganised and far from perfect, we have always found that a good doctor’s expertise – though hard to come by – is irreplaceable.

As I mentioned earlier, I do see the value in tracking symptoms and vitals, but that value is unlocked when that data is used to inform a professional’s advice – not handed over to companies that profit from it, or worse, enable a greater malice.

In the end, it seems we are at an impasse between our opinions, but I believe the stakes are too high to rely on apps when lower-risk options – like consulting with doctors – have helped people navigate these struggles for generations. Again, I understand why apps can be appealing, but I think it’s important to consider what might be lost in the long term, especially when it comes to something as personal and vital as our health.

Perhaps, the energy should be put toward making good healthcare more accessible – which, I believe, is what these apps promised.

[–] [email protected] 2 points 2 weeks ago (1 children)

Not much to add here, as seemingly we agree on almost all real issues. Just wanted to acknowledge your response and wish you and yours well in all things.

[–] [email protected] 3 points 2 weeks ago

Yes, despite our long exchanges we do agree on the core issues. I appreciate your acknowledgement. Wishing you and yours well too.