this post was submitted on 08 Sep 2024
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Chronic Illness

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submitted 1 month ago* (last edited 1 month ago) by [email protected] to c/[email protected]
 

I have recently discovered that I am hypermobile but social anxiety and the pain prevent me from going to a doctor (also I don't trust them and they scare me) Do you have any tips on living with chronic pain? Anything from over-the-counter drugs and physical aids to tips for everyday tasks I know I'll have to talk to a doctor someday but in the meantime I'd like to be able to survive lol

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[–] [email protected] 1 points 1 month ago

This is amazing, I genuinely teared up. Thank you so much, everyone.

A bit of context: I'm AuDHD and non binary and sadly I already have so much medical PTSD, both from physical doctors and from psychiatrists and mental health professionals. Some didn't listen, some attributed everything to anxiety, from some I suffered actual conversion therapy. I've been told so many times by so many doctors that my pain was not real and it was all in my head. I had to diagnose myself with AuDHD because no one ever recognized it, and I found a psychotherapist who has hEDS and suggested I might be hypermobile. I risked ending up in a mental health hospital more than once for stuff I did not have because I wasn't diagnosed with Autism and ADHD. I also have extreme social anxiety and if I do go to a doctor, I just can't remember anything about the stuff they ask and afterwards I forget what they tell me, so it ends up being completely useless.

That said, I appreciate all of the answers so much, and I think I will try and look for a doctor who isn't an idiot and at least knows what transgender means, but first I need to understand more about the syndromes and which ones I have so I don't get screwed, so if you have resources (even more technical ones) I'd love to look at them.

Thank you thank you thank you. I feel less alone.