Self diagnosed? Definitely
Actually, properly diagnosed? Probably underdiagnosed actually. Friend of mine had to go through a lot of pricey hoops just to get tested in a reputable place.
this post was submitted on 11 Sep 2023
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It's definitely under diagnosed. 5% of the world population is thought to have ADHD. I know plenty of people around me that show serious signs of it and they have no idea. Granted I'm not a psychiatrist, but I live with an ADHD person and the similarities are striking.
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This feels like the correct answer.
The amount of people I go on a date with and tell them I'm ADHD and they follow with, "me too" when they are obviously not, is crushing. I'm glad my learning disability is fun to cosplay for you. The juxtaposition of people I meet in wild and tell them I'm ADHD and they are like, "Oh what's that like?" as they're looking for the lost keys in their left hand or leg stemming, feels... curious.
If I could snap my fingers and not have ADHD I'd do it. People think ADHD is just being scatterbrained and hyperactive and think its at best quirky and at worst annoying but a lot of the hallmarks of ADHD cause a lot of suffering just existing in society. eg. executive dysfunction/impulsivity, emotion dysregulation (seemingly feels like your emotions are harder to control which is part of the rejection sensitivity), difficulty building and maintaining relationships, difficulty holding jobs, being unable to quiet your thoughts late at night (80% of us have insomnia/delayed sleep patterns to one extent or another) and being very prone to boredom that can often feel almost physically painful. And of course, society treats you as if your personality is shit because what people see is someone forgetting things, making bad snap decisions and generally being annoying. So a lot of us dont think highly of ourselves because thats often how we are conditioned. To think we are lazy, uncaring, annoying and thoughtless/impulsive.
I’ve also got ADHD, so I understand the struggle. But personally I think ADHD has a lot of upsides as well. People with ADHD are often really fun to be around, they have often really different perspectives on the world and see things that other people don’t, and tend to take everything in their stride. ADHD people in my experience are better at out-of-the-box thinking, handling stressful and chaotic situations, and extremely capable when they’re interested in something.
The reason that ADHD feels debilitating is because capitalist society forces us to conform with neurotypical behaviour, because conformity is more important than outcomes. If ADHD people were allowed to work their to own schedules, and allowed to focus mainly on tasks which interest them and offload things that they find boring/tedious, it would go a long way towards getting the best out of people with ADHD. If it’s handled well, they can easily outperform neurotypical coworkers, it’s just very much about harnessing the chaotic energy that we have.
ADHD feels debilitating because there are things you have to be able to do to function in any society that ADHD makes more difficult than it is for everyone else. I have to remember to take medication that keeps me alive. I have to put my contacts in or I am metaphorically blind as a bat and it feels a lot better to actually be able to see things. I have to interact with other people in an acceptable manner i.e not blurting out the first intrusive thought that comes to mind. I have to eat and drink when I should. Yeah I literally forget to do that a lot because I am engrossed in some activity or another. I have to go to sleep at a normal hour or I wake up feeling like shit because my circadian rhythm is fucked up. There are just some things you will never ever avoid doing even in a luxury space communist utopia.
And while there are some advantages to ADHD like creativity, hyperfocus and being less likely to die of obesity related diseases due to hyperactivity, it is not fucking worth all of the other stuff that caused me to want to be tested for it. Not because society forces normality on me but because I want to do a lot of stuff without having a wrestling match with my own brain.
My wants and needs are important to me and those wants and needs are often incompatible with the ADHD tribe that I was born into.
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Probably over diagnosed by people self-diagnosing. Probably significantly under diagnosed officially/clinically.
And the above is true for a LOT of conditions, not just ADHD.
My daughter has a learning disability. Dyslexia and some weird kind of error with certain fine motor skills. The diagnosis from everyone? ADHD-put her on drugs. What drugs would you like? If one drugs doesn’t fix her, we’ll try two drugs.
Thank god my wife and I resisted. Nobody could explain what was going on and how drugs would fix it. I ain’t gonna lie, her elementary school days were rough. But now, straight A college student in her junior year.
I’m sure there are people looking for it, but my experience was default diagnosis by doctors and schools pushing adhd onto kids where it wasn’t appropriate.
There's a very vague term called NLD or Neurological Learning Disorder with which I was diagnosed at the time. Iirc a big part of it is issues with fine motor skills because of bad communication between the two brain halves. Also gets misdiagnosed as ADHD quite often.
I was diagnosed with Dyspraxia as a kid which was a wildly vague fine motor skills disorder that made me near unintelligible prior to speech therapy. I still have issues slurring words from time to time, but it’s not significant.
I don’t think anyone knew what was going on with me tbh. But I def have ADHD, and there’s suspicion I’m autistic as well. I’m working on getting a neuropsych eval done now to try and understand better.
Doctors are idiots when it comes to this stuff. ADHD should be diagnosed by a psychologist, just like any other neurodivergence.
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cough cough OCD cough cough
Being acquaintances for a while with someone with OCD was enough to tell me that the vast majority of people with “OCD” do not have OCD.
I've noticed this too. Even people telling me i have OCD because i sort certain things in certain ways. (i do NOT have OCD. I just can't stand some things if they are not in my order.) But people are very quick to diagnose other's. wich is okay imo as long as there is reason to believe so, so that you can go to the doctor and check wether that's true. Problem is people don't know that they don't understand the illness/disability/etc. à la dunning krüger effect.
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As medicine advances, most diseases or conditions will be diagnosed more often. With the extreme increase in technology in the past 50+ years I wouldn't say that cancer is being over diagnosed just because we can find it better. While mental health science is arguably far behind traditional medicine, I wouldn't say that ADHD as a whole is over diagnosed. Is it probable that there are some bad doctors that will simply hand wave kids away with an ADHD diagnosis? Sure but those cases are far less common than you might think. As someone with ADHD I have seen the sentiment that it is over diagnosed arise in my life as people claiming that what I suffer from isn't real and I need to pay attention better, or that I'm just "abusing the Adderall to get ahead in life." So no I don't think it is over diagnosed and people around the world need to have a better understanding of how mental illness truly affects the people that suffer.
I've always been fascinated how ADHD is the disorder that gets singled out for over diagnosis but not ASD.
AFAIK there's not much in the way of pharma treatments for ASD so public policy couldn't care less about it.
There's money to be made in demonizing ADHD.
Forgive my naivety, how do you get rich off demonising adhd? It would stand to reason that bucks are made by over diagnosing and selling superfluous treatment, what would I sell you after adhd is demonised?
You gotta think diabolically.
My psychiatrist here in Australia cautioned me when doing online research into different ADHD medications to check the country of origin and avoid American sources where possible, as there is a huge anti-drug bias in US public and medical literature, and to stick to European/Australasian/other resources for more accurate information on mechanism of action and potential side-effects.
Boy, he was not wrong. If you go on many American websites that talk about the pros and cons of one stimulant or another, it'll overemphasise its propensity towards abuse and extensively list the side effects without bothering to explain how the drug actually works in the body.
You'll think it's an unbiased source, at first, because the website itself only seem to contain basic drug information (at a cursory glance) only to scroll to the bottom and find that the website is owned/sponsored by a rehab facility, of all places.
It'd seem like there's money to be made off of dx and prescribing ADHD meds, but we all know how fucking hard it is to dx'd in the first place, let alone prescribed something that works. It's not wildly profitable to prescribe drugs with heavy federal restrictions on it.
What is profitable, however, is to give someone 6 other psychiatric medications to treat ongoing mental health issues from undiagnosed ADHD, and the half dozen other co-morbid issues like substance abuse disorders, PTSD, anxiety/depression, bipolar disorders, body dysmorphia, eating disorders, and so on- none of which you'll get much traction in treating without also addressing ADHD, and some of which may be misdiagnosed or more effectively treated when identifying the core disorder.
Why treat 1 condition when you can treat 7 ¯_(ツ)_/¯ Better yet, you can do that in an inpatient facility that their insurance can pay for, where you can convince them that their substance abuse issues are due to moral failing rather than an attempt at self-medicating a (widely speaking) treatable disorder, yet hypocritically prescribe them a cocktail of other psychiatric medications for their "moral failing".
That being said, I'm not saying all rehab facilities are bad or operate in this manner, but it is just one of many ways that the medical and pharmaceutical industry inadvertently or directly discourages appropriate ADHD treatment, additionally fuelled by the government's bigotry-fuelled war on drugs.
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They're selling another product.
Conmen like Tate and their ilk would love to sell you on the idea that Adderall is evil.
The scientific, peer-reviewed answer is that it is significantly under-diagnosed in adults as well as in those AFAB of all ages. Most sources say up to 80% of adults with ADHD are undiagnosed and/or untreated.
May I have this source? Being genuine here, I don't doubt this but I may use it to show people and maybe put a bug in their ear to get diagnosed.
I found these citations in a paper on the first page of Google. I apologize but I have not verified them.
Fayyad J, De Graaf R, Kessler R, et al. Cross-national prevalence and correlates of adult attention-deficit/hyperactivity disorder. Br J Psychiatry. 2007;190(5):402–409.
Retz W, Retz-Junginger P, Thome J, et al. Pharmacological treatment of adult ADHD in Europe. World J Biol Psychiatry. 2011;12(suppl 1):89–94.
Newcorn JH, Weiss M, Stein MA. The complexity of ADHD: diagnosis and treatment of the adult patient with comorbidities. CNS Spectr. 2007;12(suppl 12):1–14. quiz 15–16.
Thank you!
No problem, hope it was helpful. I will review further when I have time.
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Don't know. I'm on a 2-5 year waiting list to find out 😵💫
Dang, that’s a long wait time. I hope you get some answers soon.
Cheers. Me too
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I mentioned my adhd diagnosis in a post earlier today so you may be the same inquirer. Regardless here's a little bit more of my story.
I was born in 1986 and not diagnosed with ADHD until 2021 (I was 35). I didn't do anything about about my diagnosis until 2023 when my career started going off the rails. I sometimes fantasize about what my career would have been like if I'd been diagnosed (and acted on the diagnosis) 15 years ago when I started to suspect something was up.
For me it mostly manifests as struggles to initiate tasks unless they're interesting or urgent.
Is it over diagnosed? Maybe. Our brains evolved to hunt, collect berries, and work collaboratively with our clan. If we struggle do so TPS reports so that shareholders know how their incomprehensible riches are being used, is it fair to call that a mental disorder?
Is paying money to the pharma-man so we can be a better money machine for your bosses shareholders kinda fucked up? Yes.
But will it also help me better support the things I value? My family? My community? My interests? Yes.
I think if you want to know if ADHD is over diagnosed you need a scholarly resource, not an internet forum.
The other thing that makes it tough is that we don't really have a good grasp of what it is. At least, last i checked.
Like, are we just pathologizing people on this or the other side of a fuzzy threshold of executive function? Or is there a population that really is physiologically/genetically different? Either way, is there something wrong with society where people within a previously normal range of executive function are now unable to keep up?
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For adults, it's under-diagnosed. Because some of the most common prescriptions for it are stimulants like Adderall, there is a fear that adults are trying to scam the doctor. Additionally, and imo even more infuriatingly, doctors are apprehensive about diagnosing an adult because "you made it this far in life without needing help. You can't be ADHD/autistic/neurodivergent." Fuck that mentality. I'm ADHD and autistic and I don't need a doctor to validate me when they can't even agree amongst themselves half the time.
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Do you have any idea how hard it is to be diagnosed with ADHD?
I was diagnosed when I was 32. In order to be diagnosed, I had to go through a series of screening tests that measured intelligence, executive function, behavioral assessments, interviews with family that knew me when I was a kid, "testimony" from my therapist and other tests meant to rule out alternative explanations. eg. sleep deprivation, health issues, depression, anxiety etc. And it was expensive. Thousands of dollars and many hours. Its essentially designed to mentally tax you until the ADHD is detectable through any masking that you do.
I was diagnosed as a kid and was on ritalin and later adderal but stopped taking all that stuff after elementary school. I'm 36 now and I wonder if it'd be a major pain to get on meds again as an adult or if my previous diagnosis would still be good enough.
Fwiw, sounds pretty similar to me. Depends on your doc, probably... but I have a good relationship with my Dr. and my ability to discuss my previous diagnosis as well as meds and what worked etc. Was enough for me.
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Definitely not in women - the opposite is true.
Yes, and no. This is an unanswerable question.
Negligence, ineptitude, and mistakes happen in every field and medicine, education, and parenting are no different.
There is pain in being diagnosed correctly just as much as there is incorrectly. The question we should be asking instead for both sides of the aisle is how do we best deliver knowledge, support, and care in the correct format to those who need it?
Probably under diagnosed with people who actually have it.
It can be both overdiagnosed and underdiagnosed! Both these things can be true at once:
- Some people who would benefit from ADHD treatment do not receive it.
- Some people receive ADHD treatment who would be better off without it.
One contributing factor is that people are treated differently in the contexts where ADHD is likely to come up (e.g. in schools) due to things like race, gender, and family income.
A black boy and a white girl having the same "brain stuff" going on are likely to be treated differently by teachers and parents — not only due to overt sexism and racism, not only hormonal and developmental differences, but also different cultural experiences with medicine (and medical mistreatment), different parental fears, etc.
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